| Do something for me -- Jax |
Today was the follow up with the new Rheumatologist. My labs continue to show massive inflammation but the Lupus markers from the previous 2 sets of labs were gone. My chest x-ray shows no signs of interstitial lung disease, which is a good thing. The bouts of pleurisy are short-lived and probably due to me overdoing it. Undifferentiated Mixed Connective Tissue Disorder is now the diagnosis and Lupus falls under that umbrella as does Scleroderma, Sjogren's, and Mixed Connective Tissue Disorder. It's all nasty stuff don't google it. There could be other things (cancer) causing the inflammation but the doctor doesn't think that is anything to worry about as my symptoms are abated/controlled with the Plaquenil. More labs and a follow up in 3 months. I seriously want to be my dog.
| Wow Beth we have long legs -- Jax |
Per usual, I am in that % of the study population where "rare occurance may happen". 51 years of this and I really should be used to it. You never get used to it, believe me.
| Hello Turtle, sorry I punch you each time I go into the house -- Jax |
The new gravel tires, I settled on the 28mm, arrived and I put them on the Dolce. I could have gone with 30mm there was enough space. A quick cruise up and down the road showed these to be pretty comfy tires, I rode without bike shorts. Granted it was just over a mile, but still even up and down the street on the Ruby in regular shorts is ouchy. Got the breaks tightened up. They weren't really grabbing on my test ride, so the downhill back home was a bit scary!! I have to fiddle around with the shifters to get into the big ring and make shifting smoother. I'm sure it's more a factor of sitting for years and not being used. And put on the black bar tape. The white was so freaking gross. I know the handlebars get dirty but I don't want to see the grease, dirt, grime, and snot!!
| Holy crap that was strong. I don't remember walking the dog. |
Jax took me for a walk and so ended our day.
| Ugly disgusting Bar tape |
Tuesday (1) The humidity dial was turned up. Faith came over to deliver some beers and share some of mine and take Jax for a walk. It was nice to have human interaction. I forget I actually like talking to people after nearly 4 days of being alone. I think I sidetracked the conversation no less than a billion times as a new thought sprung into my head and had to be released.
| Pretty clean bar tape |
It was one of those days where I felt off all day. It is weird, and generally, that is followed by a few days of feeling normal. Now if I could just figure out how to time these days to when i want to not feel off.
| The Dog's Bed His new Camping Bed |
Wednesday (1) I have totally lost track of the days. That is kind of nice, fortunately (or unfortunately) my life is scheduled around a calendar that pings when I need to know something or be somewhere. Despite getting rousted at 5:30 a.m. with a thunder and lightning just around the corner from me I couldn't grasp the fact this would cause the humidity to lower as the day progressed. I took Jax out early and it was humid and he was miserable. I have a Wednesday night commitment so taking him when it was much drier and cooler wasn't going to happen anyhow. It all seemed to work out and he seemed to figure out Dave was coming home sometime today so he's been on edge the entire freaking day. Gak. This must be similar to what it is like when the dogs (now dog) figured out I would be coming home that day. Probably worse because Dave is gone for more than 8 or 12 hours like never.
| Short Hike on a humid day |
I've enjoyed my time working from home and getting actual work done and small chores around the house, those best done without a spouse staring over your shoulder.
| Marytr |
Thursday (1) UGH back to going into work. That was a bit of a shock to my system. My new 'boss' from my 'temporary' assignment needed to re-re-schedule our meeting to be right smack dab in my 2-hour run/walk/eat lunch window. I couldn't re-re-re-schedule this, I just couldn't. I think I scare her a little bit because she has only managed very low-level people and is used to an overreaction to her requests. I get to requests in a reasonable amount of time and I know if I knee-jerk on something it always goes poorly. I need to think things through before acting. We had a small kerfuffle over a request from a senior leader with a little panic on her part that I wasn't moving fast enough so more people got thrown in the mix and well, we looked bad. I think we've moved past that. It was one of the things I directly asked her about. She also needs to feel more secure with me I think that helped.
| Hello Dinner Ball -- Jax |
Dave was busy getting out of vacation mode and into work mode and had no interest in taking Jax on a hike. I took him on an in town walk and he really seems to be hating these less and less.
| My present! |
Friday (3.5 & 30) Time to get back to getting exercise. I took a week off, I probably needed it mentally.
| Those two birds watched Jax walk by and he didn't even notice them. |
Ro and I did the 'easy' beach loop and when I got home I had a short rest and then went out for a 20-mile ride that turned into a 30-mile ride and ended up getting locked out of the house. I REALLY need to remember house keys!!!
| Marshmallow Farm! |
I did a modified Tour de Farms, I added on a loop through Eric's neighborhood. Ahhh, it was a very nice ride.
| Good beer |
Saturday (4 & 2) Volunteered at Run with The Beavers at the water stop midway through the loop. Always fun. I'm finally figuring out how to hand off to the elites. Always a good time and I enjoyed catching up with Shawn about his knee replacement. There is hope for decrepit old before their time bodies!!
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| Hambone |
Took Jax on a walk about town after I finally got the gravel grinder gears and breaks under control. Damn the Ultegra components are nice and work well. The Shimano I have on Dolly are so clunky!! Can't wait to get her out on the gravel roads. Probably not till August as there are other commitments in the near future.
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| Excellent Beer |
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| Bike, coffee, chocolate croissant YUMMY! |
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| The only plant I can't kill! |
Knitting: Slow progress is progress. There was a flaw in the yarn dyeing, I still didn't start them at the same spot coupled with the flaw, they don't mirror image each other.
Reading: Listened to Crimetown Pod cast on Providence. It left me wondering if we stopped glamorizing criminals if they would lose their appeal? I also wonder if people really did the correct thing instead of what would advance them or not piss someone off, if we'd be better for it? Or basically people are evil and some can control it while others cannot?
All in all a pretty good week. I got off my bum and did something and felt better for it, funny how that works!
Sincerely,
Beth, wondering what the next set of test results will reveal




